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During the congress, E-Posters will be accessible to all participants on the congress website 24/7, as well as in the E-poster stations in the congress center.
Preparing your E-Poster
Please review the E-Poster format requirements carefully when preparing your E-Poster. Should your E-Poster not meet the mentioned requirements, it may not be displayed as described above.
E-Poster Submission Deadline
Please prepare and upload your E-Poster no later than March 14, 2026 11.59PM CET. After this date, you will no longer be able to prepare and upload your E-poster and it will not be displayed and accessible on the congress website.
Please follow the instructions below to input your abstract title.
Abstract titles should be brief and reflect the content of the abstract.
The Standardised Outcomes in Nephrology (SONG) initiative has generated multiple core outcome sets across the kidney disease spectrum, yet the relative importance of these outcomes has not been synthesised across populations. The Meta-SONG project integrates individual participant survey responses from all SONG stakeholder surveys to identify shared and divergent outcome priorities across the kidney disease trajectory.
We combined data from the first round of seven international SONG surveys encompassing 12 outcomes common to at least three surveys. Transplant outcomes were harmonized by grouping graft failure with progression to kidney failure and graft function with kidney function. Each survey included a 9-point Likert rating task for each outcome. Outcome importance was estimated using cumulative link mixed models (CLMM) in the pooled dataset, with random intercepts for participant and survey to adjust for inter-rater differences in scoring style. Predicted probabilities of high importance (≥8/9) and 95% confidence intervals (CIs) were derived for each outcome and stakeholder group.
A total of 5,005 participants (41% patients, 5% caregivers, 53% health professionals) contributed 64,938 individual ratings. Overall, 47% of all ratings were ≥8, indicating high importance. This proportion was highest among patients (52%) and lowest among health professionals (43%). The CLMM, adjusting for inter-rater and survey effects, showed broad agreement that progression to kidney failure and kidney function were top priorities (Table 1). For death, health professionals were 1.2 times more likely than patients to rate it as critically important, whereas patients were 1.5 times more likely to prioritise life participation and twice as likely to rate fatigue as highly important. These differences persisted after adjustment for age and gender, and sensitivity analyses, including leave-one-survey-out testing, yielded consistent results.
Table 1. Predicted probability of rating each outcome as highly important (≥8), adjusted for age, gender, and inter-rater and survey effects.
Outcome
Patients % (95% CI)
Caregivers % (95% CI)
Health Prof % (95% CI)
Progression to kidney failure
89 (85, 92)
87 (82, 92)
90 (87, 93)
Kidney function
87 (83, 90)
82 (77, 86)
Death
70 (64, 76)
77 (69, 84)
82 (78, 87)
Cardiovascular disease
62 (54, 69)
58 (48, 68)
67 (60, 73)
Life participation
54 (47, 61)
44 (35, 54)
39 (32, 46)
Fatigue
52 (44, 59)
40 (31, 49)
28 (22, 34)
Potassium
44 (36, 51)
43 (31, 56)
Physical function
41 (34, 49)
33 (25, 41)
24 (19, 29)
Sleep
36 (29, 43)
31 (22, 39)
20 (15, 25)
Pain
35 (28, 42)
31 (23, 40)
20 (16, 25)
Depression
35 (28, 41)
44 (34, 53)
30 (24, 36)
Hospitalisation
32 (26, 38)
37 (28, 46)
44 (37, 51)
Across seven SONG surveys, participants showed strong consensus on the central importance of kidney disease progression and survival outcomes, but patients valued preserving kidney function more than survival alone. Persistent gaps in symptom and participation outcomes highlight opportunities to align trial endpoints with what matters most to patients.
