RECLASSIFICATION OF NATIONAL DIALYSIS AND TRANSPLANT REGISTRIES IN LATIN AMERICA: CURRENT STATUS, CHALLENGES AND OPPORTUNITIES FOR IMPROVEMENT

 

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RECLASSIFICATION OF NATIONAL DIALYSIS AND TRANSPLANT REGISTRIES IN LATIN AMERICA: CURRENT STATUS, CHALLENGES AND OPPORTUNITIES FOR IMPROVEMENT

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Alejandro
Ferreiro Fuentes
Romina Perez Manelli rperezmanelli@gmail.com Hospital Italiano de Buenos Aires Internal Medicine Research Unit Ciudad Autónoma de Buenos Aires Argentina - SLANH Latin American Dialysis and Transplant Registry committee Ciudad Autónoma de Buenos Aires Argentina
Alejandro Ferreiro Fuentes aferreirofuentes@gmail.com SLANH Latin American Dialysis and Transplant Registry committee Montevideo Uruguay *
Guillermo Rosa Diez guillermo.rosadiez@hospitalitaliano.org.ar Hospital Italiano de Buenos Aires Nephrology Division Ciudad Autónoma de Buenos Aires Argentina - SLANH Latin American Dialysis and Transplant Registry committee Ciudad Autónoma de Buenos Aires Argentina
Group of National Delegates of the Latin American Dialysis and Transplant Registry (RLDTR) registro@slanh.net SLANH RLDTR Panamá Panama -
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Strengthening renal health information systems is a priority for the Latin American Society of Nephrology and Hypertension (SLANH) within the framework of the Latin American Dialysis and Transplant Registry (RLDTR). With the aim of improving the quality, comparability, and sustainability of the collected data, the RLDTR Committee conducted a regional reclassification of national dialysis and transplant registries.

The objective of this study was to describe the degree of development, coverage, and characteristics of national dialysis and transplant registries in Latin American countries through a regional reclassification process, in order to identify strengths, gaps, and opportunities for improvement.

A structured questionnaire was developed using the REDCap platform, based on the methodological framework proposed by Rosa-Diez et al. (Clin Kidney J. 2021;14(7):1731–1737). The instrument included seven main sections: existence of the registry, scope, interoperability, reporting, legal framework, data content, and quality control, as well as items on governance, funding, human resources, and technological support.

The survey was distributed in October 2025 to the national delegates of each country. Results were analyzed descriptively, considering the presence or absence of systematic national registries, their coverage, level of institutionalization, funding sources, and systems used for data management.

Table 1. Development stage of national dialysis and transplant registries in Latin AmericaEighteen countries responded through their national delegates. Active dialysis and/or transplant registries were identified, showing different levels of development and formalization. As shown in Table 1, consolidated national registries coexist with partial institutional or regional initiatives and ongoing projects. Interoperability between dialysis and transplant registries remains limited (Table 2); most countries reported none or partial integration, while full interoperability is exceptional. Registries are primarily funded by ministries of health, with complementary support from scientific societies and healthcare providers. Most countries reported remunerated personnel, although staffing is generally small and part-time. Various technological supports are used for data entry, ranging from spreadsheets and institutional systems to online platforms and open-source software, sometimes coexisting with paper records.

Open comments highlighted recurring challenges: limited interoperability, incomplete public-private integration, insufficient funding and human resources, and the need for technical support for data analysis and dissemination.

The reclassification process led by the Committee allowed for the updating and systematization of information on dialysis and transplant registries in Latin America. The findings reveal substantial heterogeneity in their development, with coexistence of consolidated systems, partial initiatives, and emerging projects. Common challenges persist, including limited interoperability, lack of specific legal frameworks, and insufficient human and financial resources.

At the same time, the sustained commitment of scientific societies and health authorities to strengthen renal information systems and promote regional data integration and harmonization is noteworthy.

This initiative represents a first step toward a more precise characterization of regional registries, aimed at improving the quality, comparability, and usefulness of information for decision-making in renal health.

Kewords