CURRENT STATUS OF NATIONAL DIALYSIS AND KIDNEY TRANSPLANT REGISTRIES IN LATIN AMERICA: UPDATE FROM THE LATIN AMERICAN DIALYSIS AND KIDNEY TRANSPLANT REGISTRY (RLDTR)

 

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CURRENT STATUS OF NATIONAL DIALYSIS AND KIDNEY TRANSPLANT REGISTRIES IN LATIN AMERICA: UPDATE FROM THE LATIN AMERICAN DIALYSIS AND KIDNEY TRANSPLANT REGISTRY (RLDTR)

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Alejandro
Ferreiro Fuentes
Romina Perez Manelli rperezmanelli@gmail.com Hospital Italiano de Buenos Aires Internal Medicine Research Unit Ciudad Autónoma de Buenos Aires Argentina - SLANH Latin American Dialysis and Transplant Registry committee Ciudad Autónoma de Buenos Aires Argentina
Alejandro Ferreiro Fuentes aferreirofuentes@gmail.com SLANH Latin American Dialysis and Transplant Registry committee Montevideo Uruguay *
Guillermo Rosa Diez guillermo.rosadiez@hospitalitaliano.org.ar Hospital Italiano de Buenos Aires Nephrology Division Ciudad Autónoma de Buenos Aires Argentina - SLANH Latin American Dialysis and Transplant Registry committee Ciudad Autónoma de Buenos Aires Argentina
Group of National Delegates of the Latin American Dialysis and Transplant Registry (RLDTR) registro@slanh.net SLANH RLDTR Panamá Panama -
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The Latin American Dialysis and Kidney Transplant Registry (RLDTR) collects and analyzes information from the national registries of the member countries of the Latin American Society of Nephrology and Hypertension (SLANH). This initiative enables monitoring of the situation and trends in kidney replacement therapy in the region and generates evidence useful for health planning and decision-making.

The objective of this study was to describe the current status of national dialysis and kidney transplant registries in Latin America, as well as their main limitations and opportunities, based on the information provided by participating countries during the Registry Workshop held at the latest SLANH Congress.

Information was requested from national delegates of the 20 countries that make up the RLDTR using a standardized template. Data collection was carried out within the framework of the Registry Workshop held during the last SLANH Congress.

The template included variables on the total population of each country; the existence of national registries for hemodialysis, peritoneal dialysis, and kidney transplantation; whether these registries are unified or independent; the institutions responsible for their management; and the total number of patients in each treatment modality. Additional data were requested on the percentage of kidney transplants from deceased donors, the three main causes of dialysis initiation, and a qualitative analysis of strengths, weaknesses, and proposed solutions to improve the development and sustainability of national registries.

Table 1. Distribution of patients undergoing kidney replacement therapy and percentage of kidney transplants from deceased donors by country as of December 31, 2024 (RLDTR, 2025)

Data were received from 19 Latin American countries, representing a total population of approximately 464 million inhabitants. Most countries have active registries for dialysis and kidney transplantation, although with marked differences in coverage and updating frequency. Table 1 summarizes regional data on kidney replacement therapy and transplantation. Overall, the findings reveal structural inequalities in the development of registries and kidney replacement therapy programs, underscoring the need to strengthen regional coordination and data standardization.

Regarding registry functioning, countries identified as strengths the existence of regulatory frameworks, institutional support, and continuity over time. The most frequent weaknesses included lack of inter-institutional integration, heterogeneity in coverage and mandatory reporting, underreporting, and technological limitations. Proposed solutions included modernization and integration of platforms, appointment of permanent responsible personnel, implementation of automated data validation, and continuous staff training to improve the quality and sustainability of registries in the region.

The survey conducted by the RLDTR made it possible to update and consolidate information on national dialysis and kidney transplant registries in 19 Latin American countries, identifying differences in coverage, frequency, and degree of integration. Although most countries have active registries, gaps persist in data standardization, technological interoperability, and mandatory reporting.

The results highlight the need to strengthen regulatory frameworks, ensure dedicated technical and human resources, and promote modernization and integration of registry platforms to consolidate robust, comparable, and sustainable information systems in the region.

Kewords