French translation and psychometrics evaluation of the SONG Life Participation instrument among kidney transplant recipients

 

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French translation and psychometrics evaluation of the SONG Life Participation instrument among kidney transplant recipients

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Bénédicte
Sautenet
Bénédicte Sautenet benedicte.sautenet@gmail.com CHU TOURS Nephrology Tours France *
Mathis Brier mbrier@vivaldi.net idheo idheo Nantes France -
Allison Jaure allison.jaure@sydney.edu.au Centre for Kidney Research The Children's Hospital at Westmead Westmead Australia -
Valentin Maisons valentin.maisons@gmail.com CHU TOURS Nephrology Tours France -
Angela Ju angela.ju@sydney.edu.au Centre for Kidney Research The Children's Hospital at Westmead Westmead Australia -
Magali Giral magali.giral@chu-nantes.fr CHU Nantes Nephrology Nantes France -
Yseulys Dubuy yseulys.univ.nantes@gmail.com Nantes Université MethodS in Patients-centered outcomes and HEalth ResEarch Nantes France -
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The SONG-Life Participation (SONG-LP) instrument is a short, patient-reported outcome measure designed to evaluate life participation among kidney transplant recipients (KTR). Developed by the SONG initiative, this tool has been validated in English, but no French version has been psychometrically evaluated.

We translated the SONG-LP into French following a forward-backward translation process with linguistic validation. Between March and June 2023, 136 adult KTRs from two French university hospitals (Nantes and Tours) completed the SONG-LP and PROMIS-29 questionnaires. We assessed acceptability, reliability (internal consistency and test-retest),  and construct validity.

The SONG-LP score was computable for 99% of respondents, with minimal missing or "not applicable" responses. Ceiling effects were observed, particularly for the “work” and “social” items. Internal consistency was good (Cronbach’s α = 0.85) and test-retest reliability was acceptable (ICC = 0.75).

The French version of the SONG-LP instrument is a valid and reliable tool for assessing life participation in KTRs.

Kewords