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During the congress, E-Posters will be accessible to all participants on the congress website 24/7, as well as in the E-poster stations in the congress center.
Preparing your E-Poster
Please review the E-Poster format requirements carefully when preparing your E-Poster. Should your E-Poster not meet the mentioned requirements, it may not be displayed as described above.
E-Poster Submission Deadline
Please prepare and upload your E-Poster no later than March 14, 2026 11.59PM CET. After this date, you will no longer be able to prepare and upload your E-poster and it will not be displayed and accessible on the congress website.
Please follow the instructions below to input your abstract title.
Abstract titles should be brief and reflect the content of the abstract.
Caregivers of children with CKD experience increased burden impairing their life participation. However, little remains known about assessing life participation in caregivers of children with CKD. We aim to describe the perspectives of children with CKD, their caregivers and health professionals on caregiver life participation.
A secondary analysis of qualitative data from the Standardised Outcomes in Nephrology – Children and Adolescents Initiative (SONG-Kids) life participation stream were analysed, including four workshops (one in-person English language, three online, two English and one Spanish language) involving 171 participants including 79 patients and caregivers and 92 health professionals from 16 countries. We extracted and thematically analysed data from children with CKD, caregivers, and health professionals, on the perspectives on life participation of caregivers of children with CKD.
Six themes were identified. Limiting family activities and normality included CKD altering family activities and a sense of normality. Traditional gender roles impeding life participation highlighted the caring responsibilities largely felt by the mother. Balancing carer and parental responsibilities included holding multiple, often conflicting responsibilities. Allowing for flexible work arrangements focussed on facilitating work opportunities amongst caregiving activities. Downstream effects determining a child’s life participation highlighted that a caregiver’s wellbeing and life participation enables their child’s life participation. Assessing life participation in parents of children with CKD proposes measuring life participation in caregivers.
Patients, caregivers and health professionals all identified challenges faced by caregivers resulting in impaired life participation, whilst also recognising the opportunity to frequently assess life participation of caregivers, noting the influence of caregiver life participation on children with CKD life participation. More efforts are needed to determine clear strategies to address caregiver life participation.
