Activities of the Polycystic Kidney Disease Association

 

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E-Poster Presentation

During the congress, E-Posters will be accessible to all participants on the congress website 24/7, as well as in the E-poster stations in the congress center. 

Preparing your E-Poster

Please review the E-Poster format requirements carefully when preparing your E-Poster. Should your E-Poster not meet the mentioned requirements, it may not be displayed as described above.

​E-Poster Submission Deadline

Please prepare and upload your E-Poster no later than March 14, 2026 11.59PM CET. After this date, you will no longer be able to prepare and upload your E-poster and it will not be displayed and accessible on the congress website.​

E-Poster Format Requirements
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  • E-Poster can be prepared in PowerPoint (one (1) PowerPoint slide) but must be saved and submitted as PDF file.
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  • Language: English
  • Include your abstract number
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https://storage.unitedwebnetwork.com/files/1099/0042d5c0173b31843eee61fa6625f465.pdf
Activities of the Polycystic Kidney Disease Association

Please follow the instructions below to input your abstract title.

Abstract titles should be brief and reflect the content of the abstract.

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Saori
Nishio
Saori Nishio saorin@med.hokudai.ac.jp Hokkaido University Hospital Department of Hemodialysis an aspheresis Sapppro Japan *
Shigeo Horie shorie@juntendo.ac.jp Juntendo University Graduate School of Medicine Department of Urology Tokyo Japan -
Satoru Muto s-muto@juntendo.ac.jp Department of Urology Juntendo University Nerima Hospital Tokyo Japan -
Kenji Osafune osafune.kenji.5m@kyoto-u.ac.jp Center for iPS Cell Research and Application (CiRA) Kyoto University Kyoto Japan -
Haruna Kawano harunase@juntendo.ac.jp Juntendo University Graduate School of Medicine Department of UrologyMedicin Tokyo Japan -
Sumi Hidaka knakanis@cs.u-ryukyu.ac.jp Shonan Kamakura General Hospital Kidney Disease and Transplant Center Kanagawa Japan -
Tamio Yamaguchi tyamaguc@suzuka-u.ac.jp Suzuka University of Medical Science Department of Medical Technology, Faculty of Health Science Suzuka Japan -
Kazushige Hanaoka hanaoka_87_kh@fd6.so-net.ne.jp Daisan Hospital The Jikei University Department of General Internal Medicine Tokyo Japan -
Jyunichi Hoshino hoshino.junichi@twmu.ac.jp Tokyo Women's Medical University Department of Nephrology Tokyo Japan -
Shizuko Nagao shizun@fujita-hu.ac.jp Fujita Health University Advanced Research Center for Animal Models of Human Diseases Toyoake Japan -
Eiko Hodouchi, ekohodo101@gmail.com Polycystic Kidney Disease Association Polycystic Kidney Disease Association Tokyo Japan -
Kouichi Naknishi knakanis@cs.u-ryukyu.ac.jp University of the Ryukyus Department of Child Health and Welfare (Pediatrics), Graduate School of Medicine Olomawa Japan -
Tatuya Suwabe suwabetat@gmail.com Toranomon Hospital Kajigaya Department of Nephrology Kanagawa Japan -
Shinya Nakatan Osaka Metropolitan University Osaka Metropolitan University Department of Metabolism, Endocrinology and Molecular Medicine Osaka Japan -
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The Polycystic Kidney Disease Association was established in April 2021 with the aim of bringing together PKD patients, their families, and healthcare professionals on an equal footing. Our mission is to create a community where people can share information, support one another, and work collaboratively toward achieving fulfilling treatment and an improved quality of life.

The Association’s objectives are to: 1.   Promote research and surveys on the diagnosis and treatment of PKD, 2. Advance scientific studies to clarify the genetic and pathophysiological mechanisms, 3. Organize educational events to enhance knowledge and awareness, 4. Foster collaboration with specialists and organizations both in Japan and overseas, 5. Increase public awareness through publications and distribution of educational materials, and 6. Strengthen the system and quality of genetic counseling services.

Recently, we have been involved in the following activities: 1.Information and Awareness: We provide information to patients, their families, and the general public to deepen their understanding of the disease. For example, we publish newsletters on our website. We also support healthcare professionals in improving their knowledge and clinical practices through certification programs and self-training exercises. 2.Community Support and Exchange Events : We organize various events to promote connection and mutual support among patients, families, and medical professionals—such as online lectures via Zoom, “PKD Café” (casual tea gatherings), and interactive sessions between patients and healthcare providers. 3.Medical System Development and Professional Training : We have established systems such as the PKD Certified Physician Examination and the PKD Certified Medical Professional Program to ensure that specialized care and treatment are available across Japan. We also provide information to help patients find appropriate medical institutions and receive proper care. 4.  Research and Study Support : We support research related to PKD, including studies on disease mechanisms, genetic diagnosis, and treatment development. To foster the next generation of researchers, we offer research encouragement awards and other forms of support for young scientists.    The number of members is increasing year by year. As of October 2025, the Association comprises a total of 716 members: 525 physicians, 152 patients and family members, and 39 others. Currently, 393 certified PKD specialists are providing care for PKD patients across Japan.

We will continue to pursue a wide range of activities in the future.

Kewords