IMPLEMENTING RESEARCH EVIDENCE IN CHRONIC KIDNEY DISEASE PRACTICE AND POLICY: PERSPECTIVES OF PATIENTS, CAREGIVERS, AND HEALTH PROFESSIONALS

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IMPLEMENTING RESEARCH EVIDENCE IN CHRONIC KIDNEY DISEASE PRACTICE AND POLICY: PERSPECTIVES OF PATIENTS, CAREGIVERS, AND HEALTH PROFESSIONALS

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Co-author 1

Dale Coghlan dale.coghlan@flinders.edu.au Flinders University College of Medicine and Public Health Bedford Park Australia *

Co-author 2

Nicole Scholes-Robertson nicole.scholes-robertson@sydney.edu.au University of Sydney School of Public Health Sydney Australia -

Co-author 3

Jonathan Craig Jonathan.Craig@flinders.edu.au Flinders University College of Medicine and Public Health Bedford Park Australia -

Co-author 4

Anastasia Hughes anastasia.hughes@sydney.edu.au University of Sydney School of Public Health Sydney Australia -

Co-author 5

Amanda Sluiter amanda.sluiter@sydney.edu.au University of Sydney School of Public Health Sydney Australia -

Co-author 6

Rebecca Wu rebecca.wu@sydney.edu.au University of Sydney School of Public Health Sydney Australia -

Co-author 7

Shilpanjali Jesudason shilpa.jesudason@sa.gov.au Australia and New Zealand Dialysis and Transplant Registry South Australian Health & Medical Research Institute Adelaide Australia -

Co-author 8

Allison Jaure allison.jaure@sydney.edu.au University of Sydney School of Public Health Sydney Australia -

Co-author 9

Co-author 10

Co-author 11

Co-author 12

Co-author 13

Co-author 14

Co-author 15

Introduction

Improving the translation of research is critical for enhancing health outcomes and informing policy. This workshop aimed to identify strategies to strengthen the uptake and integration of chronic kidney disease (CKD) research evidence in healthcare practice and policy from the perspectives of patients, caregivers, and health professionals.

Methods

A workshop was conducted with patients (n=18), caregivers (n=9), and health professionals (n=102) from Australia and New Zealand. Breakout groups (n=13) of 6–10 participants were facilitated in person and online. Participants discussed how research is accessed and used in care and policy, what makes research implementable, and how equity can be ensured so evidence benefits diverse populations. Sessions were transcribed and thematically analysed.

Results

Three themes were identified. ‘Co-production for credibility’ highlighted that engaging patients and caregivers in governance and priority-setting enhanced the legitimacy of research, fostered trust, and strengthened the likelihood of uptake in practice and policy. Maintaining transparent feedback loops between researchers and consumers was viewed as essential for sustaining these partnerships over time. Diversity and equity for broader transferability underscored the importance of including under-represented groups to ensure research findings are generalisable and culturally relevant. Tailoring approaches to community contexts and communication preferences builds on trust and improves uptake. Dedicated time and funding were emphasized for equitable outreach and translation; without these, inclusion risks becoming tokenistic rather than transformative. Accessible and actionable integration of evidence described the need for research outputs that clearly articulate clinical and policy implications and are presented in practical, user-friendly formats, (i.e. plain-language summaries and visual materials).

Conclusion

CKD research is more likely to be implemented when it is credible, inclusive, and embedded into clinical and policy workflows. Embedding these approaches may strengthen the translation of research into routine practice and policy, ultimately improving care and outcomes for people with kidney disease.

Kewords