PATIENT PREFERENCES FOR INTERVENTIONS AND SERVICES TO IMPROVE SOCIAL CONNECTIONS IN CKD: AN INTERVIEW STUDY

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PATIENT PREFERENCES FOR INTERVENTIONS AND SERVICES TO IMPROVE SOCIAL CONNECTIONS IN CKD: AN INTERVIEW STUDY

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Co-author 1

Amanda Sluiter amanda.sluiter@sydney.edu.au The University of Sydney Sydney School of Public Health Sydney Australia * Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia

Co-author 2

Mary Ann Nicdao Maryann.Nicdao@health.nsw.gov.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia Department of Renal Medicine Westmead Hospital, Sydney Australia

Co-author 3

Chandana Guha chandana.guha@sydney.edu.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia

Co-author 4

Nicole Scholes-Robertson nicole.scholes-robertson@sydney.edu.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia

Co-author 5

Germaine Wong germaine.wong@health.nsw.gov.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia Department of Renal Medicine Westmead Hospital, Sydney Australia

Co-author 6

Allison Jaure allison.jaure@sydney.edu.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia

Co-author 7

Karine Manera karine.manera@sydney.edu.au The University of Sydney Sydney School of Public Health Sydney Australia - Centre for Kidney Research, The Children’s Hospital at Westmead Sydney Australia

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Introduction

Poor social connections, in the form of loneliness and social isolation, are associated with a range of adverse health outcomes. In chronic kidney disease (CKD), few interventions or strategies to improve social connections have been conducted. Involvement of patients in intervention design is critical to enhance relevance, acceptability, and uptake. The aim of this study is to describe patients’ perspectives and preferences for interventions and strategies to improve their social connections and social well-being.

Methods

We conducted semi-structured interviews with twenty-one patients with CKD receiving kidney replacement therapy across three renal units in Western Sydney Australia including home dialysis, in-centre dialysis and patients that have received a transplant. Transcripts were thematically analysed to identify recommendations for interventions/strategies informed by patients' suggestions and experiences.

Results

Participants suggested 10 interventions/strategies: psychosocial kidney support teams (including social workers, psychologists and patient navigators); buddy services (one on one support from fellow kidney patients); online forums and support groups for patients to connect with other patients; in-centre social activities for patients and caregiver; external social/leisure/church groups; workshops and educational sessions relating to what is happening within the kidney space being social groups, kidney treatment options and research; increased travel opportunities; making dialysis/clinic more a community feel and less clinical (brighter space and happier staff more homely feel), improving relationships with clinicians and clinic staff; and increased community/government awareness of kidney disease as a whole.

Conclusion

Interventions and strategies to combat poor social connections among patients with CKD included both peer and professional support activities. Research into the effectiveness of these patient-focused interventions is needed with future projects.

The content presented in the abstract was presented at the Australia and New Zealand Society of Nephrology Congress 2024 in Adelaide. I declare there is no conflict in resubmitting at this conference.

Kewords