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During the congress, E-Posters will be accessible to all participants on the congress website 24/7, as well as in the E-poster stations in the congress center.
Preparing your E-Poster
Please review the E-Poster format requirements carefully when preparing your E-Poster. Should your E-Poster not meet the mentioned requirements, it may not be displayed as described above.
E-Poster Submission Deadline
Please prepare and upload your E-Poster no later than March 14, 2026 11.59PM CET. After this date, you will no longer be able to prepare and upload your E-poster and it will not be displayed and accessible on the congress website.
Please follow the instructions below to input your abstract title.
Abstract titles should be brief and reflect the content of the abstract.
Patients with sickle cell disease (SCD) experience multisystem complications due to chronic hemolysis and vaso-occlusion, with sickle cell nephropathy (SCN) being a major contributor to chronic kidney disease (CKD) and kidney failure (KF). Despite the high burden of SCD-associated KF, little is known about how patients experience and cope with this unique multimorbidity.
This dual-center qualitative study explored the lived experiences of adult patients with SCD and an estimated glomerular filtration rate of ≲15 ml/min/1.73 m². Face-to-face semi-structured interviews were conducted, and thematic analysis was performed using grounded theory methodology. The interviews were conducted in Arabic by trained interviewers between February 2024 and November 2024 and lasted approximately 15 to 35 minutes. Bilingual nephrologists transcribed and translated the interviews into English for coding and analysis. Data were coded using a web-based qualitative research software in an iterative process using inductive coding.
Among 10 participants (8 Males), seven received center hemodialysis, two were on peritoneal dialysis, and one was at the pre-dialysis stage. SCD was the primary cause of their kidney failure. We identified four themes describing the lived experience of SCD and KF: (1) adjustment to KF, (2) pain, fatigue, and crises, (3) gaps in knowledge and education, and (4) fragmented care and systemic barriers (Figure 1). Religious faith, family support, and resilience emerged as important coping mechanisms, while patients reported feeling unprepared for dialysis initiation and inadequately informed about modality choices.
Patients with SCD and KF face profound physical and psychosocial challenges compounded by fragmented care. These findings highlight the need for multidisciplinary, patient-centered services, structured education on dialysis options, and improved coordination between nephrology and hematology teams, and provide insights to inform the design of future interventions.
