FEASIBILITY AND ACCEPTABILITY OF A CO-DESIGNED SELF-MANAGEMENT PROGRAM FOR PEOPLE WITH KIDNEY FAILURE

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FEASIBILITY AND ACCEPTABILITY OF A CO-DESIGNED SELF-MANAGEMENT PROGRAM FOR PEOPLE WITH KIDNEY FAILURE

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Co-author 1

Laura Lunardi laura.lunardi@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide, South Australia Australia * University of South Australia Clinical & Health Sciences Adelaide Australia

Co-author 2

Richard K. Le Leu Richard.LeLeu@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide Australia - University of Adelaide Faculty of Health and Medical Sciences Adelaide Australia

Co-author 3

Anne Britton Anne.Britton@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Speciality Medicine 1 Adelaide Australia -

Co-author 4

Shilpanjali Jesudason Shilpa.Jesudason@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide Australia - University of Adelaide Faculty of Health and Medical Sciences Adelaide Australia

Co-author 5

Fiona Donnelly Fiona.Donnelly@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide Australia -

Co-author 6

Monique Borlace Monique.Borlace@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide Australia -

Co-author 7

Jie Zeng Jie.Zeng@sa.gov.au Central Northern Adelaide Renal and Transplantation Service Renal Adelaide Australia -

Co-author 8

Dorothea Dumuid Dot.Dumuid@unisa.edu.au University of South Australia Allied Health & Human Performance Adelaide Australia - University of South Australia Alliance for Research in Exercise Nutrition and Activity (ARENA) Adelaide Australia

Co-author 9

Paul N. Bennett Paul.Bennett@griffith.edu.au Griffith University School of Nursing and Midwifery Queensland Australia -

Co-author 10

Lisa A. Matricciani Lisa.Matricciani@unisa.edu.au University of South Australia Clinical & Health Sciences Adelaide Australia - University of South Australia Alliance for Research in Exercise Nutrition and Activity Adelaide Australia

Co-author 11

Consumer Consortium Central Northern Adelaide Renal and Transplantation Service Rbastin1@bigpond.com Central Northern Adelaide Renal and Transplantation Service (CNARTS) Renal Adelaide Australia -

Co-author 12

Co-author 13

Co-author 14

Co-author 15

Introduction

Effective self-management is essential in chronic kidney disease (CKD), with higher patient activation associated with improved outcomes. This self-management program was co-designed with people with kidney disease to enhance knowledge, skills, and confidence in managing advanced CKD. This study evaluated the program feasibility and acceptability.

Methods

Adults with kidney failure not yet initiated dialysis were enrolled in a 12-week co-designed nurse-led intervention. This self-management program included motivational interviewing, structured goal setting, and educational modules. Feasibility and acceptability measures were recruitment, retention, adherence, and feedback.

Results

Of the 119 patients screened, 104 were eligible. A consecutive sampling method was applied to invite the first 40 patients to take part in the study. 33 provided consent and enrolled, with all but two completing the program (retention 94%). Of the 31 participants who completed the program, adherence to all modules was 100%. Most participants engaged with the digital platform (74%), while some preferred printed materials (26%). Post-program evaluations indicated improved CKD knowledge, greater confidence in self-management, and enhanced readiness for kidney failure treatment. Qualitative feedback highlighted the convenience of home-based learning, with suggestions for improved readability and more individualised support.

Conclusion

This co-designed self-management program was feasible and acceptable for patients with kidney failure not yet receiving dialysis. Feasibility was enhanced by the active involvement of renal consumers in the program design, ensuring relevance and accessibility for participants. Findings support its potential to strengthen patient activation and preparedness for kidney replacement therapy, warranting evaluation in a larger controlled trial.

Kewords