IMPACT OF DIALYSIS MODALITY ON PATIENTS' LIFE PLANS: INCLUS-DIAL, A SURVEY FOR INDEPENDENT PATIENTS

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E-Poster

https://storage.unitedwebnetwork.com/files/1099/4c08d472ebcc8f3f1ffd70bbb0789e44.pdf

Abstract Title

First Name *

Cécile

Last Name *

Couchoud

Co-author 1

Fabrice Huré fabrice.hure.35@gmail.com AUB Sante Dialyse Rennes

Co-author 2

Eric Laruelle eric.laruelle@aub-sante.fr AUB Sante Dialyse Rennes

Co-author 3

Thibault Dolley Hitze Thibault.DOLLEY-HITZE@aub-sante.fr AUB Sante Dialyse Saint Malo

Co-author 4

Sahar Bayat sahar.bayat-makoei@ehesp.fr Univ Rennes, EHESP, CNRS, Inserm Arènes - UMR 6051, RSMS) - U 1309 Rennes

Co-author 5

Co-author 6

Co-author 7

Co-author 8

Co-author 9

Co-author 10

Co-author 11

Co-author 12

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Introduction

Chronic renal failure at dialysis stage is a serious pathology that radically alters patients' lives. The constraints associated with time-consuming treatment and increased fatigue have a major impact on the employment rate and, more generally, on participation in ancillary occupational activities (physical activities, voluntary activities, whether social, cultural or sporting). The objective of this study was to compare life plans of four dialysis modalities that enable patients to play a substantial role in their own care and have social and professional lives : non-assisted hemodialysis (HD) in self-care units, non-assisted Automated Peritoneal Dialysis, daily home HD, and non-facility-based nocturnal extended hours HD (1).

Methods

Questionnaires that covered professional, extra-professional (voluntary work) and leisure activities, level of fatigue (SONG), level of physical activity and sedentariness (weekly energy expenditure, RPAQ) and quality of life (EuroQol-5D-5L) were proposed by nephrologists to their patients in the Frenhc networks of private not-for-profit dialysis centres.

Results

Despite a young age, the patients had low levels of occupational integration and physical activity, complaining of fatigue and an altered quality of life. Patients on Long Nocturnal HD are more likely in paid employement (p<0.05, adjusted on age) and a tendency towards a better perceived state of overall health.

Conclusions

There is still a great deal of progress to be made in improving patients' quality of life and getting them involved in social and physical activities.

(1) Home Dialysis Does Not Have the Monopoly on Low Cost. Kidney Int Rep. 2022 Oct 27;8(1):188-196

Partial results were presented as a poster at the congress of the SFNDT in 2023, Liege, Belgium.

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