ADVANCING SELF-MANAGEMENT SUPPORT IN ADULTS WITH CHRONIC KIDNEY DISEASE

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E-Poster

https://storage.unitedwebnetwork.com/files/1099/27a5d5a27d9be55444a5b78278592edc.pdf

Abstract Title

First Name *

Helen

Last Name *

Chiu

Co-author 1

Brenda Lee Brenda.Lee2@bcrenal.ca BC Renal Learning, People and Operations Vancocouver

Co-author 2

Sushila Saunders sushila.saunders@bcrenal.ca BC Renal Home Therapies and Palliative Care Vancouver

Co-author 3

Gloria Freeborn gfreeborn@bcrenal.ca BC Renal Strategic Initiatives, Education and Development Vancouver

Co-author 4

Adeera Levin ALevin@providencehealth.bc.ca The University of British Columbia Medicine Vancouver

Co-author 5

Co-author 6

Co-author 7

Co-author 8

Co-author 9

Co-author 10

Co-author 11

Co-author 12

Co-author 13

Co-author 14

Co-author 15

Introduction

Self-management is crucial for people living with chronic conditions. However, little is known about the perception of self-management support at a population level.

To assess the experience of patients receiving chronic kidney disease (CKD) care in the health authority renal programs in British Columbia (BC), Canada, BC Renal periodically conducts a province-wide patient experience survey that includes a validated patient-reported experience measure (PREM). The PREM specifically evaluates patient perception of self-management support based on the Chronic Care Model.

Results of the 2016 patient experience survey indicated that collaborative patient goal-setting, a key element in self-management, has significant potential to enhance overall patient experience in kidney care.

To inform subsequent action planning, we adopted a mixed-method approach to identify and enable improved goal-setting for adults with CKD from the perspectives of kidney health professionals, patients, and family caregivers living with CKD.

Methods

We facilitated a series of focus group with patients, family caregivers and health professionals of various disciplines (53 participants) across all renal programs, as well as an action-planning workshop with key stakeholders (42 participants), including health professionals, patients, family caregivers and community partners in BC. Input from these engagement activities informed a provincial strategy and worksheet (finalized in Fall 2020) for all key stakeholder groups to take tangible actions to improve patient goal-setting across the province.

Results

Results of the subsequent patient experience survey conducted in early 2022 found that patient goal-setting remains a key area of improvement, though some signs of improvement were observed in most kidney care settings, despite the various challenges of past years.

Conclusions

Ongoing support in integrating goal-setting conversations into routine practice at the local level, and sharing of lessons learned as a provincial kidney care community will likely yield further progress in improving collaborative patient goal-setting in BC over time.

This work was originally submitted for the Canadian Society of Nephrology AGM.

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