Managing Rare Kidney Diseases Across the Lifespan: From Childhood to Adulthood

7 Feb 2025 2:15 p.m. 3:45 p.m.

Kumudini Hall 301

Jonathan Barratt Chair United KingdomUniversity of Leicester, Leicester, UK

Session description:
This session will look at rare kidney diseases from a holistic point of view, considering the latest innovations and the opportunities that registries and reference networks offer for advancing knowledge, while also exploring the patient experience, with a focus on Africa.
Learning Objectives:
1. Discuss the latest advancements and innovations in rare kidney disease. 2. Understand the opportunities that reference networks and registries can offer. 3. Highlight the experience and challenges patients face, with a focus on Africa.

Time	Session

2:15 p.m. 2:33 p.m.	New Innovations and Best Practices for Rare Kidney Disease SK1001-01 Jonathan Barratt Speaker jb81@leicester.ac.ukUnited KingdomUniversity of Leicester, Leicester, UK
2:33 p.m. 2:51 p.m.	How Can the CureGN and NEPTUNE Help Us Better Understand Rare Kidney Disease SK1001-02 MatthiasKretzler Speaker kretzler@umich.eduUnited StatesUniversity of Michigan
2:51 p.m. 3:09 p.m.	Using Patient Registry Data to Fight Rare Kidney Diseases SK1001-03 DanielGale Speaker d.gale@ucl.ac.ukUnited KingdomUniversity College London
3:09 p.m. 3:27 p.m.	Living With Rare Kidney Disease in Africa: Experiences and Challenges SK1001-04 IfeomaUlasi Speaker ifeoma.ulasi@unn.edu.ngNigeriaCollege of Medicine, University of Nigeria
3:27 p.m. 3:45 p.m.	Q&A SK1001-05