Managing Rare Kidney Diseases Across the Lifespan: From Childhood to Adulthood

7 Feb 2025 2:15 p.m. 3:45 p.m.
Kumudini Hall 301
JonathanBarratt Chair University of Leicester, Leicester, UKUnited Kingdom

Session description:
This session will look at rare kidney diseases from a holistic point of view, considering the latest innovations and the opportunities that registries and reference networks offer for advancing knowledge, while also exploring the patient experience, with a focus on Africa.
Learning Objectives:
​1. Discuss the latest advancements and innovations in rare kidney disease. 2. Understand the opportunities that reference networks and registries can offer. 3. Highlight the experience and challenges patients face, with a focus on Africa.

Time Session
2:15 p.m.
2:33 p.m.
New Innovations and Best Practices for Rare Kidney Disease
JonathanBarratt Speaker University of Leicester, Leicester, UKUnited Kingdom
2:33 p.m.
2:51 p.m.
How Can the CureGN and NEPTUNE Help Us Better Understand Rare Kidney Disease
MatthiasKretzler Speaker University of MichiganUnited States
2:51 p.m.
3:09 p.m.
Using Patient Registry Data to Fight Rare Kidney Diseases
DanielGale Speaker University College LondonUnited Kingdom
3:09 p.m.
3:27 p.m.
Living With Rare Kidney Disease in Africa: Experiences and Challenges
IfeomaUlasi Speaker College of Medicine, University of NigeriaNigeria
3:27 p.m.
3:45 p.m.
Q&A