Managing Rare Kidney Diseases Across the Lifespan: From Childhood to Adulthood

7 Feb 2025 2:15 p.m. 3:45 p.m.
Kumudini Hall 301
JonathanBarratt Chair University of Leicester, Leicester, UKUnited Kingdom
SradhaKotwal Chair The George Institute for Global HealthAustralia
TukaramJamale Chair Professor and Head, Department of Nephrology, Seth GS Medical College and KEM Hospital, Mumbai IndiaIndia

Session description:
This session will look at rare kidney diseases from a holistic point of view, considering the latest innovations and the opportunities that registries and reference networks offer for advancing knowledge, while also exploring the patient experience, with a focus on Africa.
Learning Objectives:
​1. Discuss the latest advancements and innovations in rare kidney disease. 2. Understand the opportunities that reference networks and registries can offer. 3. Highlight the experience and challenges patients face, with a focus on Africa.

Time Session
2:15 p.m.
2:33 p.m.
New Innovations and Best Practices for Rare Kidney Disease
JonathanBarratt Speaker jb81@leicester.ac.ukUniversity of Leicester, Leicester, UKUnited Kingdom
2:33 p.m.
2:51 p.m.
How Can the CureGN Help Us Better Understand Rare Kidney Disease?
LauraMariani Speaker lmariani@umich.eduUniversity of MichiganUnited States
2:51 p.m.
3:09 p.m.
Using Patient Registry Data to Fight Rare Kidney Diseases
DanielGale Speaker d.gale@ucl.ac.ukUniversity College LondonUnited Kingdom
3:09 p.m.
3:27 p.m.
Living With Rare Kidney Disease in Africa: Experiences and Challenges
IfeomaUlasi Speaker ifeoma.ulasi@unn.edu.ngCollege of Medicine, University of NigeriaNigeria
3:27 p.m.
3:45 p.m.
Q&A